Objectve of the medical conference is to provide an update on current researchers and clinical trials against lynphangioleiomyomatosis, a debilitating and deadly rare disease for which today there is no cure. The disease being not only rare but also multifunctional requires . . . → Read More: First European LAM Conference’s Program]]> The first European LAM Conference will be held in Udine from 1st to 3rd of October 2010.

Objectve of the medical conference is to provide an update on current researchers and clinical trials against lynphangioleiomyomatosis, a debilitating and deadly rare disease for which today there is no cure.
The disease being not only rare but also multifunctional requires a multidisciplinary and international approach.
The Conference will be chaired by leading LAM and TS experts and researchers in the world, which will gather in Udine to discuss the tools, resources and strategies to be undertaken in the future at national and international level, to reach as soon as possible to an effective treatment of lynphangioleiomyomatosis.
The full conference program is available below.

The school is situated in one of the poorest neighborhoods in Addis Abbeba and . . . → Read More: The school of Mekenissa (Ethiopia)]]> The Chiesi Foundation supports in 2010 the project “The school of Mekenissa” in Ethiopia in collaboration with the association Fidenza per i bambini nel mondo of Fidenza, Parma, as part of an international solidarity projects in developing countries to support children in difficulty.

The school is situated in one of the poorest neighborhoods in Addis Abbeba and it is attended by 66 children who have aged 5 to 10 years; the school of Mekenissa is the only for free in the city, because families cannot afford payment of a charge.

But the school of Mekenissa means not only access to education but also have the only meal of the day.

The recognized association Addis Fire Association (AFA) asked to be supported for a period of two years allowing it to not disrupt the “continum” of the school; in this period will be activated all ministerial and private channels to ensure to the school a  better structured survival.

You can have more information about the project and its progress on the website  www.fidenzaforchildren.org

72% of its 15.2 milion habitants live below the poverty line; schooling is reduced and health facilities are lacking. Many people, especially children and adults, die from . . . → Read More: Neonatology Healthcare: Solidarity Project in Burkina Faso]]> Burkina Faso is located in the African Sahel, the country’ s economy relies on agriculture, mostly subsistence which takes about 80% of the workforce contributing to 40% of national GDP.

72% of its 15.2 milion habitants live below the poverty line; schooling is reduced and health facilities are lacking. Many people, especially children and adults, die from lack of health, malaria, measles, tubercolosis, tetanus, AIDS and malnutrition.

The CMSC of Ouagadougou, Burkina Faso’s main maternity with more than 5.000 shares for year, is the only group that cares for premature babies and disease in the area that goes beyond the borders of Burkina Faso affecting patients also coming from Mali, Mauritania and Sierra Leone.

Project purpose is to adapt the standard treatment for premature babies and disease at the Centre St Camille of Ouagadougou, the most modern care protocol in a situation with very limited technological  resources.

The method of intervention was to train a staff of 19 people and 4 auxiliary nurses working in a department where O2 is the only resource available and using the annual statistical data wich are measured EG, weight, inborn, outborn, diagnosis, survival and mortality to see the benefit of our impact.

The 11 missions so far carried out from 2005 to 2010 (8 phisycians and 3 nurses) under the ESTHER project, which has as main actors Medicus Mundi, University of Brescia, Spedali Civili’s Hospital in Brescia, the USL of Parma and the Camillian’s delegation of Burkina Faso made it possible to improve welfare standards by lowerig the mortality between 1000 and 1500 grams from 76.8% to 63.9%.

The project includes new missions such as medical and nursing prospective to make more appropriate treatment standards for improving survival rates, trying to meet the costs of a sustainable health care in this reality.

“Certainly what remains in this experience is a strong link with friends and burkinabe’s missionaries who works at CMSC and therefore not a static relationship with health issues in Africa, but a gratifying human relationship and a common sight on small patients must be the same anywhere in the world we find ourself ” (Paolo Villani, neonatology, Fidenza,Parma)